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The 'Any illness or disease or problem is bad' and its awareness thread

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DreamedReality DreamedReality Find all posts by this user Senior Member Posts:433 Joined:Aug 2013 Character:Jaques Server:Balmung Reputation: 86 RE: Autoimmunity | #3 11-27-2014, 05:21 AM Stuff behind tag cuz long and ya. Show Content autoimmunity woes There is a blood disorder that runs in my father's side that I ended up with. It has no name of it's own but the basic jist is that my red blood cells are misshapen. But not so bad as to qualify for sickle-cell. Those of us that have it end up with an auto-immune response after some kind of childhood illness. Our spleens start attacking and killing these misshapen red blood cells en masse causing anemia. It manifested for me when I was about 3 after I caught whooping cough. Thankfully an experimental surgery of removing the spleen stopped the auto-immune response. That happened when I was 10. The docs gave my mom a 50/50 chance of the surgery working at the time. But ya... I understand. It was rough growing up since I was so weakened thanks to the disease and the fairly high levels of steroids I had to be constantly on. There were large chunks of that time where I was going to get blood drawn up to three times a week, getting blood transfusions, and my spleen was so swollen I was almost on bed rest for fear that it would burst. No recess. No P.E. No playing outside after school. Couldn't go to a friend's house. None of that. There were times when a bad flu or sickness was going around the school that I'd get pulled from classes because they didn't want me catching it. When I did get sick I usually got it bad and took longer than the other kids to recover. It... was hard keeping/making friends. And none of the other kids 'got it' since I looked fine to them. There were other kids (and even parents and teachers!) that would accuse me of 'faking it' to get attention and to get out of P.E. I know I got very very lucky with my autoimmunity. Most don't get an 'easy fix'. I'm always at risk of something triggering another response and antibodies taking up the fight in place of the spleen but so far (~19 years sans spleen) that hasn't happened. Annnyway. TL;DR: I understand. *sends hugs and chocolate* The flare-ups are -horrible- and I hope your current one settles back down for you soon. I hope whatever meds you're on continue to work for a long time. Hang in there! Sukbaator Mol Bio (main) Jaques Guillaume Wiki  (Retired) Phoenix Rose FC

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Messages In This Thread

The 'Any illness or disease or problem is bad' and its awareness thread - by g0ne - 11-27-2014, 03:54 AM RE: Autoimmunity - by Yangh - 11-27-2014, 04:31 AM RE: Autoimmunity - by DreamedReality - 11-27-2014, 05:21 AM RE: Autoimmunity - by Zhavi - 11-27-2014, 05:29 AM RE: Autoimmunity - by Kellach Woods - 11-27-2014, 08:41 AM RE: Autoimmunity - by g0ne - 11-27-2014, 10:36 AM RE: Autoimmunity - by g0ne - 12-10-2014, 09:56 AM RE: Autoimmunity - by Cassandra Lachance - 12-10-2014, 11:33 AM RE: Autoimmunity - by Melodia - 12-10-2014, 11:37 AM RE: Autoimmunity - by Zhavi - 12-10-2014, 12:00 PM RE: Autoimmunity - by g0ne - 12-11-2014, 01:40 AM RE: Autoimmunity - by Atoli - 12-11-2014, 02:21 AM RE: Autoimmunity - by Reshie - 12-11-2014, 02:43 AM RE: Autoimmunity - by Mae - 12-11-2014, 11:44 PM RE: The 'Any illness or disease is bad' and its awareness thread - by g0ne - 02-19-2015, 03:37 AM RE: The 'Any illness or disease or problem is bad' and its awareness thread - by Nebbs - 02-19-2015, 04:21 AM RE: The 'Any illness or disease or problem is bad' and its awareness thread - by Parvacake - 02-19-2015, 06:32 AM RE: The 'Any illness or disease or problem is bad' and its awareness thread - by g0ne - 01-18-2016, 08:21 AM RE: The 'Any illness or disease or problem is bad' and its awareness thread - by Tara - 01-18-2016, 09:26 AM RE: The 'Any illness or disease or problem is bad' and its awareness thread - by 13uddy - 01-18-2016, 09:32 AM RE: The 'Any illness or disease or problem is bad' and its awareness thread - by Roe Dad - 01-18-2016, 02:37 PM RE: The 'Any illness or disease or problem is bad' and its awareness thread - by Azureus Scipio - 01-18-2016, 03:03 PM

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