Howdy peoples!
I don't remember if I posted several MONTHS ago about my lungs dying and kinda... left it at that and went rather silent for the most part, but I figured I'd take a peeksy into the forums again and give all of y'all an update!!
So for a rough idea of what I've had done----
Over 50 large tubes of blood drawn over the course of the months.
Several arterial blood-gas drawings (if any of you have enough experience in a hospital, you know those HURRRRRRRT like an Au Ra's tail being tugged too hard!)
And over 30 tests performed.
After some deliberation, they had at first decided to wait a little bit, so that they could finish getting some tests done, but after this most recent visit to the doctor in Birmingham, we are pretty adamant that they are going to be listing me for lung transplant soon; hopefully by the.. oh.. middle of next month or so?
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We've gotten that bit of goodnews, along with some other good news; the transplant coordinator is writing letters that will hopefully //guarantee// me getting Social Security Disability payments that I've been having to fight for for 2 years.Â
And the other letter will hopefully get my family's insurance to pay for a portable oxygen concentrator, so that I can forego those lousy heavy tanks~! <3
Also, if things go according to other plans in regards to finances, it looks like me and my mum will be staying in an adorably cute RV trailer when we have to move to Alabama for the wait list!
I don't remember if I posted several MONTHS ago about my lungs dying and kinda... left it at that and went rather silent for the most part, but I figured I'd take a peeksy into the forums again and give all of y'all an update!!
So for a rough idea of what I've had done----
Over 50 large tubes of blood drawn over the course of the months.
Several arterial blood-gas drawings (if any of you have enough experience in a hospital, you know those HURRRRRRRT like an Au Ra's tail being tugged too hard!)
And over 30 tests performed.
After some deliberation, they had at first decided to wait a little bit, so that they could finish getting some tests done, but after this most recent visit to the doctor in Birmingham, we are pretty adamant that they are going to be listing me for lung transplant soon; hopefully by the.. oh.. middle of next month or so?
--------------------------
We've gotten that bit of goodnews, along with some other good news; the transplant coordinator is writing letters that will hopefully //guarantee// me getting Social Security Disability payments that I've been having to fight for for 2 years.Â
And the other letter will hopefully get my family's insurance to pay for a portable oxygen concentrator, so that I can forego those lousy heavy tanks~! <3
Also, if things go according to other plans in regards to finances, it looks like me and my mum will be staying in an adorably cute RV trailer when we have to move to Alabama for the wait list!
