(01-18-2016, 08:21 AM)Eleni Wrote: I love it when people think that by giving me some help they will be unfair to other people. News flash. The other people don't have a painful mixture of lupus, fibromyalgia and what not to deal with.Â*hugs Eleni tightly but gently* I'm sorry hun...rant as long as you need to, we'll listen.Â
It's funny how it takes days for you to regroup and gather your strength again, and then five minutes with a negative person shatters all that hard work.Â
It's even more hilarious when you're being denied basic rights such as a happy, healthy education just because you don't look sick. And because it would be unfair on the other student who fails his courses just because he can't pass them. Or maybe you shouldn't have picked education as a route because you are sick and you can't handle it.Â
Not only does my illness cripple me, but being berated because I'm ill does wonders too. Why are you comparing me, a broken, battered zombie, to a healthy normal individual? I'm not normal. I'm not healthy. I don't remember what it is to feel good. Â
Gotta love living the spoonie life!
Thanks to anyone who took the time to read this, and thanks to the RPC for not judging me because I'm a lupie.
(Okay, I'm done ranting. For now.)
For those who don't know...the 'spoonie life' is living with a limited amount of resources available to you day by day. A normal, healthy person has unlimited 'spoons'. Those of us who live with something chronic don't have unlimited spoons. We have to pace our 'spoons' Anything that a healthy individual can do without thinking we have to think 'will this take up a bit of our resources?' and go from there. Sometimes it's a toss up between eating and sleeping for our last spoon. And we don't always start with 10/10 spoons. No, we start at 5/10 or 2/10. Those are the bad days. The good days we have 8/10 or 10/10 or on really really rare cases 12/10+.Â
So, um, yeah. Back to cuddling Eleni. *cuddles Eleni* I can't offer any words of comfort because I don't really know you, but I can almost promise you that after this rough patch, it'll get better. *goes back to cuddling*
